Texas Family Spotlight!

 

 

Parents: Ryan and Amy Bodiford

Man of the House: Tyler 2 ½, 4q and 11q interstitial deletions

We live in Houston, TX

Tyler enjoys walks, being out of the house in public places and hanging out with all of our families. He is always smiling during bath and jammie time (just wish he would love sleeping time too). He absolutely loves TV time – his favorites are Bubble Guppies, Monsters Inc and Frozen!

He has many of the characteristics of Jacobsen kids and a few unique ones too. His newest diagnosis is his large scoliosis curve. He will be getting his first of many Mehta cast at the end of the month. We hope he adapts quickly and will be happy and playful after a couple days.

3 thoughts on “Texas Family Spotlight!

  1. Hi,
    I was just looking up Jacobsen syndrome, as my daughter has Jacobsen syndrome and is 6 years old. I read your comment about you wishing he would love sleeping more. My boyfriend and I can relate our daughter would only sleep nights during the summer. During winter months she would cry out and there was nothing we could do to soothe her. Other then bringing her to bed with us. We felt like she would never sleep. She is 6 and has just been getting better at times. I would like to hope it will work it’s self out. Definitely is hard to go through. Sometimes she just lays there awake for hours.

  2. Hi, Amy and Ryan Bodiford
    I was just looking up Jacobsen syndrome, as my daughter has Jacobsen syndrome and is 6 years old. I read your comment about you wishing he would love sleeping more. My boyfriend and I can relate our daughter would only sleep nights during the summer. During winter months she would cry out and there was nothing we could do to soothe her. Other then bringing her to bed with us. We felt like she would never sleep. She is 6 and has just been getting better at times. I would like to hope it will work it’s self out. Definitely is hard to go through. Sometimes she just lays there awake for hours.

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