Family Spotlight from Norway!

 

 

 

Meet our 11q Family from Norway!

Vera & Knut-Henrik
Leon – age 5 (JS)
Maria – age 2

We live in Norway, and are as far as we know the only family with JS in our country.

We like to be with our family and friends. We love to travel, special to warm and sunny locations. Both of the childeren love the water and swimming.
We (the parents) love to make food and experience with all of the worlds kitchens 😉
Leon loves his Ipad, music and strange sounds.

2 thoughts on “Family Spotlight from Norway!

  1. Hi, I was looking up Jacobsen syndrome as my daughter is 6 and has it. She was born 2008. We live in Canada, Ontario.

    • Hi! I have a daughter that is 15 and we live in Kentucky. We have a group on Facebook, if you search for Jacobsen Syndrome. It is a wonderful group and a wonderful support system.

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